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ALS Burpee Challenge & Deane's Walk to End ALS

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My Message

Amount Raised
$23,740.00
Fundraising Goal $99,999.00

Diagnosed with ALS on Christmas Eve 2018, at the age of 29, Deane Gorsline, an Engineer Officer in the Canadian military, is supporting the CAPTURE ALS initiative with his ALS Burpee Challenge.

In Deane’s words: "Pattern recognition is essential to success on any battlefield and the fight against ALS is no different. Part of the issue for the to identify effective therapies is the heterogeneous nature of ALS. CAPTURE ALS aims to fill a glaring deficiency in our fight against this disease by way of data collection and analysis to help answer our many questions about the disease and provide focus to therapy development."

Despite Federal promises to fund ALS research (Motion-105: https://www.ourcommons.ca/members/en/judy-a-sgro(1787)/motions/8659380), ALS Canada's request for support for the $35 Million investment it will take over a seven year period, for CAPTURE ALS, has been repeatedly ignored. 

Objective: The Comprehensive Analysis Platform To Understand, Remedy and Eliminate Amyotrophic Lateral Sclerosis (CAPTURE ALS) is an innovative initiative that will pool resources and talent in Canada to advance our understanding of the biological basis of ALS and address its heterogeneity.

Background: ALS drug discovery has been hampered by its complexity, clinical heterogeneity and rare disease status. Key advances will only be possible through multisite, multidisciplinary collaborations and the sharing of large amounts of data. CAPTURE ALS will leverage and expand the existing clinical network and infrastructure developed by the Canadian ALS NeuroImaging Consortium (CALSNIC) to provide the most comprehensive picture of a person living with ALS. Led by a group of basic and clinician scientists, it will be driven academically through four existing ALS centres of excellence in Edmonton, Toronto, Montreal, and Quebec.

Design/Methods: CAPTURE ALS will provide the infrastructure and tools to enable the collection, storage, analysis and dissemination of standardized, longitudinal, multi-dimensional data and biosamples from ALS patients, related disorders, and healthy controls across Canada. Participants will be followed prospectively to longitudinally collect detailed clinical, neurocognitive, speech, electrophysiological and imaging data. Biospecimens, including serum, plasma, peripheral blood mononuclear cells (PBMCs), cerebrospinal fluid (CSF), and urine will be collected at the same intervals, with postmortem material collected when possible.

Results: The rich datasets and samples collected through this platform will be used to develop and validate novel ALS biomarkers and enable the multidimensional stratification of ALS patients based on clinical phenotype, and imaging, genetic and cellular characteristics. Operating through Open Science principles, data and samples will be made rapidly available to investigators and industry partners.

Conclusions: CAPTURE ALS will contribute to global efforts to expedite ALS research, and provide hypothesis and data driven insights into disease mechanisms and clinical heterogeneity.

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DG ALS Burpee Challenge

My Team

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My Supporters (204)

Lesley LeMarquand donated $25.00
Oct 30, 2021 7:41 PM
Don Shanks donated $150.00
Aug 22, 2021 6:22 PM
Tim donated an undisclosed amount
Jul 8, 2021 11:14 PM
Rick R left a message
Jun 27, 2021 4:52 PM
More power to you Deane, folks such as yourself that will hopefully make that difference!
Rick R donated $25.00
Jun 27, 2021 4:50 PM
Friends of Sam's left a message
Jun 26, 2021 1:21 PM
Best wishes to reaching your goal. Truly inspirational strength and courage.
Ayeila Daneshmend donated $100.00
Jun 26, 2021 12:58 PM
Sharon left a message
Jun 26, 2021 10:05 AM
You are are an inspiring individual and i'm so glad to call you my friend. Love you Deaner.
Sharon and Peter donated $750.00
Jun 26, 2021 10:04 AM
Jason “Sam’s greasy hair” MacDonald donated $50.00
Jun 22, 2021 1:28 PM
Corey Utman donated an undisclosed amount
Jun 21, 2021 7:05 PM
Dennis Apedaile left a message
Jun 21, 2021 6:35 PM
Deane, you're doing great work for others.
Dennis Apedaile donated $200.00
Jun 21, 2021 6:34 PM
Anonymous donated an undisclosed amount
Jun 21, 2021 6:13 PM
Kurt donated an undisclosed amount
Jun 21, 2021 2:58 PM
Jenn Stanton donated $250.00
Jun 21, 2021 2:43 PM
Ben / Steph / Kis left a message
Jun 21, 2021 1:53 PM
You are bringing critical leadership to ALS advocacy in Canada. Thinking of you kept us going up the mountain. It was a big push and we did it for you brother. We love you!
Glacier Crew donated an undisclosed amount
Jun 21, 2021 1:48 PM
Kate Harland donated $110.00
Jun 21, 2021 12:03 PM
Elliott M Edelstein donated $25.00
Jun 21, 2021 9:59 AM
Chris D. left a message
Jun 21, 2021 8:45 AM
Beautifully written story on your website that doesn’t deserve to end with the terrible illness you are afflicted with. Courage to you, your wife, family and loyal friends.
Anonymous donated $100.00
Jun 21, 2021 8:39 AM
Kendra donated $200.00
Jun 21, 2021 4:59 AM
Joel B donated $25.00
Jun 21, 2021 2:22 AM
Nichole Karolat donated $300.00
Jun 21, 2021 12:43 AM
Laurel Traue donated $150.00
Jun 20, 2021 11:39 PM
Raylene MacLellan left a message
Jun 20, 2021 10:35 PM
Inspiring work Deane!
Raylene MacLellan donated $50.00
Jun 20, 2021 10:34 PM
LeeFamily donated $300.00
Jun 20, 2021 10:22 PM
Anonymous donated $100.00
Jun 20, 2021 10:04 PM
Anonymous donated an undisclosed amount
Jun 20, 2021 9:44 PM
Chelsea Henderson donated $25.00
Jun 20, 2021 9:38 PM
Evan and Nancy left a message
Jun 20, 2021 8:47 PM
Great work Deane
Evan and Nancy Charles donated an undisclosed amount
Jun 20, 2021 8:46 PM
Horst left a message
Jun 20, 2021 7:38 PM
All our love, Oma
Horst & Helga Peters donated $50.00
Jun 20, 2021 7:37 PM
AJ + Olivia donated $250.00
Jun 20, 2021 6:38 PM
Bev. left a message
Jun 20, 2021 4:48 PM
I watched you from last night to today and you have made me more and more aware how a person can have such determination and strength when on a mission, hugs to you and a little every day can go a long way.
Bev. left a message
Jun 20, 2021 4:46 PM
Watching you on your walk has made me more and more aware of how much strength and determination a person on a mission can have ...I watched with pride to ..hugs ...A little every day goes a long way.
Beverly Bourgeois donated $100.00
Jun 20, 2021 4:43 PM
Tanille & Jason Simms donated $100.00
Jun 20, 2021 12:46 PM
Teddy left a message
Jun 20, 2021 12:14 PM
We're all cheering for and wish you the best. You are in our prayers. Love, Teddy, Kristen, Autumn and Cooper
Charles Family donated $100.00
Jun 20, 2021 12:08 PM
A&M Turnbull donated $300.00
Jun 20, 2021 11:48 AM
Peigi Duncan donated $50.00
Jun 20, 2021 9:29 AM
The Everitts donated $200.00
Jun 20, 2021 7:55 AM
Brady Slomp donated $50.00
Jun 20, 2021 12:46 AM
Bruce and Linda left a message
Jun 19, 2021 11:10 PM
Go Deane Go, we are proud of you!!!
Bruce and Linda donated $100.00
Jun 19, 2021 11:08 PM
The Shepherds donated $100.00
Jun 19, 2021 10:56 PM
Anonymous donated an undisclosed amount
Jun 19, 2021 10:26 PM
Jordan donated $100.00
Jun 19, 2021 10:06 PM
Andy F donated $200.00
Jun 19, 2021 9:41 PM
Clayton Woolnough donated $25.00
Jun 19, 2021 9:20 PM
Chris Brewer donated $50.00
Jun 19, 2021 9:15 PM
Nicole Davey donated $25.00
Jun 19, 2021 8:35 PM
Patricia Slomp donated $25.00
Jun 19, 2021 8:19 PM
Eric Littlewood donated $50.00
Jun 19, 2021 8:18 PM
Caleb Slomp donated $25.00
Jun 19, 2021 6:49 PM
Nic donated $50.00
Jun 19, 2021 3:14 PM
Anonymous donated an undisclosed amount
Jun 19, 2021 3:06 PM
Natascha and William Nicola donated an undisclosed amount
Jun 19, 2021 11:20 AM
Charles and Kathleen Charles left a message
Jun 18, 2021 10:37 PM
Best Wishes
Charles and Kathleen Charles donated an undisclosed amount
Jun 18, 2021 10:37 PM
Kevin, Beatrix and Katrina left a message
Jun 18, 2021 10:31 PM
Way to go Deane!
Kevin, Beatrix and Katrina donated $200.00
Jun 18, 2021 10:28 PM
Mike Pape donated an undisclosed amount
Jun 18, 2021 10:18 PM
Mary Anne Carter donated $100.00
Jun 18, 2021 8:50 PM
Anonymous donated an undisclosed amount
Jun 18, 2021 10:09 AM
Fiona Dercole donated $50.00
Jun 17, 2021 11:36 PM
Lisa (Mueller) Sterby donated $100.00
Jun 17, 2021 6:08 PM
Everyone who knows you, and many more who don’t left a message
Jun 16, 2021 11:01 PM
The cure is out there - we are with you every step of the way to when it’s found, and beyond
Simon Turner donated an undisclosed amount
Jun 16, 2021 10:57 PM
Donna Newall left a message
Jun 15, 2021 10:31 PM
Good luck with your walk, Deane
Sue and Mike left a message
Jun 15, 2021 7:54 PM
Go Deane go!! Glad to be part of Emily and Charles' fundraising efforts. Good luck!!
Sue and Mike donated $100.00
Jun 15, 2021 7:52 PM
Kavanagh Family donated an undisclosed amount
Jun 15, 2021 10:41 AM
AAA KAVtech Automotive donated $1,500.00
Jun 15, 2021 8:15 AM
Anonymous donated $15.00
Jun 14, 2021 10:47 AM
Sophie donated $75.00
Jun 12, 2021 10:01 AM
Ellie & Fiona donated an undisclosed amount
Jun 11, 2021 6:03 PM
Michael and Lynn Charles donated an undisclosed amount
Jun 11, 2021 12:26 PM
Marlene (Sheryl/ Danielle's cousin) left a message
Jun 11, 2021 1:46 AM
Deane, you are such an inspiration - your story, your video, your advocacy, your strength and courage! Wishing you all the best! We will be walking with you!
Anonymous donated $100.00
Jun 11, 2021 1:41 AM
Caroline & Steve donated an undisclosed amount
Jun 10, 2021 5:17 PM
Toon and Sanne donated $30.00
Jun 8, 2021 3:18 PM
Jemilee / Jeff and Emilee Alpaugh left a message
Jun 4, 2021 8:29 PM
Proud of you Deane. You are the Doer of Deeds.
Jeff Alpaugh donated $100.00
Jun 4, 2021 8:28 PM
Anonymous donated $100.00
May 30, 2021 11:12 PM
Deb left a message
May 30, 2021 7:27 PM
Stay Strong
Debby Hunter donated an undisclosed amount
May 30, 2021 7:26 PM
Anonymous donated $50.00
May 11, 2021 7:24 AM
Portugese commando donated $100.00
May 5, 2021 1:08 PM
Anonymous donated an undisclosed amount
May 4, 2021 6:44 PM
Anonymous donated $200.00
May 4, 2021 4:44 PM
Karl donated $500.00
May 4, 2021 2:14 PM
J Fafard donated $50.00
May 3, 2021 11:59 PM
Anonymous donated $100.00
May 3, 2021 9:11 PM
Brendan Woelk donated $15.00
May 3, 2021 8:52 PM
Blake Davis donated $50.00
May 3, 2021 5:50 PM
Anonymous donated an undisclosed amount
May 3, 2021 4:12 PM
Jason MacDonald donated $100.00
May 3, 2021 1:51 PM
Julia Charles donated an undisclosed amount
May 2, 2021 10:38 PM
Anonymous donated $1,000.00
May 1, 2021 6:10 AM
Scott Horley donated $50.00
Apr 30, 2021 10:13 AM
Lynn and John Burgess donated an undisclosed amount
Apr 30, 2021 8:36 AM
Anonymous donated $500.00
Apr 29, 2021 6:41 PM
Caroline & Steve Burry donated an undisclosed amount
Apr 29, 2021 6:14 PM
Anonymous donated $50.00
Apr 27, 2021 11:28 PM
Captain Michael Barber & Rob and Carolyn Barber donated $500.00
Apr 26, 2021 9:14 PM
Jana S donated $100.00
Apr 26, 2021 2:59 PM
ONE SHOT! donated an undisclosed amount
Apr 26, 2021 12:04 AM
LindaArnold donated an undisclosed amount
Apr 24, 2021 1:29 PM
Karen Devito donated $50.00
Apr 23, 2021 11:25 PM
Horst left a message
Apr 23, 2021 9:49 PM
Love
Horst & Helga Peters donated $50.00
Apr 23, 2021 9:47 PM
Stephen Tomlinson donated $50.00
Apr 22, 2021 5:24 PM
Justin Lam donated $50.00
Apr 21, 2021 9:40 PM
Becca MacDonald donated $100.00
Apr 21, 2021 12:41 PM
Carson MacNeil donated $50.00
Apr 21, 2021 11:48 AM
Marta and Vilmos Szabadi donated an undisclosed amount
Apr 21, 2021 11:36 AM
Quenton donated $1,000.00
Apr 20, 2021 11:27 PM
Matthew McLeod donated an undisclosed amount
Apr 20, 2021 5:03 PM
Anonymous donated $50.00
Apr 20, 2021 4:46 PM
Anonymous donated $100.00
Apr 20, 2021 10:38 AM
-One of your friends' dad- left a message
Dec 7, 2020 9:41 AM
Everything can be taken from a man but one thing: the last of the human freedoms: to choose one’s attitude in any given set of circumstances, to choose one’s own way. (V. E. Frankl)
Anonymous donated $100.00
Dec 7, 2020 9:38 AM
Anonymous donated an undisclosed amount
Dec 6, 2020 10:00 AM
Jaemok Lee donated an undisclosed amount
Dec 5, 2020 12:38 PM
Ian Nicholls donated $500.00
Oct 20, 2020 6:49 PM
Nevenka Rudelic donated $15.00
Oct 14, 2020 11:23 PM
Dave Nicholson donated $100.00
Oct 1, 2020 10:30 PM
Ron left a message
Sep 21, 2020 6:19 PM
I've missed some of your posts lately as we have been trying to following your progress and your efforts to raise awareness for ALS. You and Danielle are in our thoughts.
Ron & Elaine Watteyne donated $100.00
Sep 21, 2020 6:16 PM
Marie Russell left a message
Jul 20, 2020 8:31 PM
wishing you all the best in your efforts to raise awareness for ALS.
Marie Russell donated $25.00
Jul 20, 2020 8:28 PM
Anonymous donated an undisclosed amount
Jun 29, 2020 5:33 PM
Dale Sturgeon donated $25.00
Jun 27, 2020 12:47 PM
Brenna donated $50.00
Jun 25, 2020 7:14 PM
Dom Lagrange donated $100.00
Jun 25, 2020 2:52 PM
Frank B donated $50.00
Jun 25, 2020 7:31 AM
Samuel Frégeau donated $25.00
Jun 24, 2020 10:25 PM
William Dumais left a message
Jun 23, 2020 10:10 PM
Very inspiring, good fundraising. Keep it up !
william dumais donated $10.00
Jun 23, 2020 10:04 PM
Katrina Sturgeon left a message
Jun 23, 2020 8:53 PM
This is an awesome campaign. It was nice to meet you on the Hill! Keep spreading your message. We need this.
Katrina Sturgeon donated an undisclosed amount
Jun 23, 2020 8:51 PM
Erica Oliver donated $25.00
Jun 23, 2020 9:15 AM
Stephanie MacDonald donated $250.00
Jun 22, 2020 11:46 PM
Chelsea and Ramey Bartels donated $300.00
Jun 22, 2020 3:06 PM
J & HJ Reinink donated $100.00
Jun 22, 2020 2:08 PM
Lianne left a message
Jun 22, 2020 11:36 AM
You are both true inspirations Deane and Danielle
Lianne Johnston donated $100.00
Jun 22, 2020 11:35 AM
Anonymous donated $100.00
Jun 22, 2020 10:53 AM
Kevin Lee donated $100.00
Jun 22, 2020 1:26 AM
Bailie McGurn donated $100.00
Jun 21, 2020 11:46 PM
Darren Sankey donated $100.00
Jun 21, 2020 11:30 PM
Anonymous donated an undisclosed amount
Jun 21, 2020 10:26 PM
Hugh donated $50.00
Jun 21, 2020 10:00 PM
Seamus Nome donated $100.00
Jun 21, 2020 8:07 PM
Andrew Stymiest donated $100.00
Jun 21, 2020 4:54 PM
Arnold Portt donated $100.00
Jun 21, 2020 4:35 PM
Laura Haley donated an undisclosed amount
Jun 21, 2020 3:48 PM
Anna Cain donated $50.00
Jun 21, 2020 2:19 PM
William Shott donated $50.00
Jun 21, 2020 11:18 AM
Karl Griffiths left a message
Jun 21, 2020 9:13 AM
Only too happy to support you Deane.
Karl Griffiths donated $100.00
Jun 21, 2020 9:10 AM
Peggy Cheek donated $25.00
Jun 17, 2020 5:37 PM
Alberta maintenance team donated $1,500.00
Jun 15, 2020 12:38 PM
Anonymous donated an undisclosed amount
Jun 15, 2020 9:50 AM
Henri left a message
Jun 14, 2020 10:44 PM
Hey Deane, We did RMC together but you were a year ahead of me. You were an absolute riot to hangout with and drink with. This is not fair that you are robbed of the prime of your life. I wish you the best of luck and hope for you.
Henri Vandersleyen donated $100.00
Jun 14, 2020 10:41 PM
Kenny donated $50.00
Jun 14, 2020 6:20 PM
Jon Reid donated $25.00
Jun 14, 2020 2:03 PM
Tiffany Nazareth donated an undisclosed amount
Jun 14, 2020 11:12 AM
Paul Charles donated $100.00
Jun 14, 2020 10:11 AM
Marc Lussier donated an undisclosed amount
Jun 14, 2020 8:59 AM
Shelby Heppner donated $100.00
Jun 13, 2020 11:11 PM
Andrew Gudmundseth donated $50.00
Jun 13, 2020 5:54 PM
Alain donated $100.00
Jun 13, 2020 4:36 PM
Kilah donated an undisclosed amount
Jun 13, 2020 3:37 PM
Janice Cole left a message
Jun 13, 2020 3:22 PM
Linda's sister
Janice Cole donated $25.00
Jun 13, 2020 3:21 PM
Linda and Bruce left a message
Jun 13, 2020 3:15 PM
Deane you inspire us!
Linda Williams and Bruce Fudger donated $200.00
Jun 13, 2020 3:12 PM
Frank BB donated $50.00
Jun 13, 2020 2:45 PM
Anonymous donated $50.00
Jun 13, 2020 12:20 PM
siobhan left a message
Jun 13, 2020 11:16 AM
I am good friends with Linda
siobhan mcardle donated $15.00
Jun 13, 2020 11:13 AM
Anonymous donated an undisclosed amount
Jun 13, 2020 10:50 AM
Kevin left a message
Jun 12, 2020 9:25 PM
1700 minutes of walking AND burpees!? That's hard core! Way to go!
Kevin Charles donated $200.00
Jun 12, 2020 9:19 PM
Nick Fisette donated $100.00
Jun 12, 2020 7:47 PM
Isabel donated $50.00
Jun 12, 2020 6:24 PM
Justin donated $50.00
Jun 12, 2020 5:13 PM
Kendra donated $200.00
Jun 12, 2020 3:46 PM
Jimmy Legrow donated $15.00
Jun 12, 2020 2:29 PM
Nelson left a message
Jun 12, 2020 1:43 PM
Keep up the good work
Anonymous donated an undisclosed amount
Jun 12, 2020 1:43 PM
Anonymous donated $50.00
Jun 12, 2020 12:20 PM
Anonymous donated $100.00
Jun 12, 2020 11:41 AM
Anonymous donated an undisclosed amount
Jun 12, 2020 10:27 AM
Sparky R Boal donated $100.00
Jun 6, 2020 11:36 PM
Blair left a message
Jun 2, 2020 9:35 PM
Respect. Love you buddy. Keep up the fight.
Blair M. donated $100.00
Jun 2, 2020 9:35 PM