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Frank's ALS Journey

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My Message

Amount Raised
$15,435.18
Fundraising Goal $500,000.00

It was August 2019.

And the journey began.  What was a quiet progression, disgustingly sped up. Within months while bed ridden nearing November, my Mother was faced with the reality of not being able to care for Frank as he needed.  So, sparring details Frank had a call from a LTC saying a room was available.  In a tearful and jarring moment; January 22, 2020 Frank was placed on a stretcher, wheeled into the back of an ambulance and removed from his home.  For ever.  

In August 2019 I began documenting the harshness of ALS by way of my social media channels. The raw reality of anguish, freight, loss of dignity and heart breaking events. How it ripped thru my hero's body without care. How it slowly tore a strip inside my family.

I continue to attempt to break thru the barriers & challenges fighting for all ALS patients in any way I can. In August 2020 I rode my bicycle from my childhood home to my Fathers resting place while streaming the challenge on Facebook. About a 2ookm ride.  I was un prepared, faced the unknown just like my Dad.

June 25th I will look to break time, face adversity and fight emotions and anguish as I embark on the same bicycle ride from my childhood home to Franks resting place.  Up hill.  I will stream it live on my Facebook again for the world to witness my challenge.

Add me on Facebook & Instagram, tell all and let's get something accomplished together.  

"you will be challenged with adversity, in life.  which means troubles.  you have to be strong, work through them, try and understand them, and learn from them"

My website www.theoneandonly.ca

Follow the Journey on my FB:

https://www.facebook.com/profile.php?id=825820141

Follow the Journey on my IG:

@jeffburnettlive

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Frank's ALS Journey

My Team

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My Supporters (177)

Bruce Killam left a message
Jul 26, 2021 11:54 PM
Hope you and your family are well. I think about your Dad often and miss talking to him. We had many a great time together and I have a lot of memories. Keep up your bike rides for ALS. It is a very worth while cause.
June & Bruce Killam donated $100.00
Jul 26, 2021 11:47 PM
Bev Strader left a message
Jul 23, 2021 8:44 AM
Thank you so much for doing this ride. My husband Joe was diagnosed in July 2020 and died December 2020 from ALS it took his life bit by bit. He was home and 5 days before he went into Chapman House. ALS is a cruel, cruel disease and I pray that there will be a cure one day soon. My heart goes out to you and your family. Thank you
Bev Strader donated $100.00
Jul 23, 2021 8:22 AM
SUKU Vitamins donated $800.18
Jul 5, 2021 1:30 PM
WeatherTech Canada donated $500.00
Jun 29, 2021 8:40 AM
Ruth Woods donated $50.00
Jun 28, 2021 12:15 PM
Rene and Jenn left a message
Jun 27, 2021 11:10 PM
Amazing job despite mother nature. Keep it going
Rene Marentette donated $25.00
Jun 27, 2021 11:06 PM
Katie Harrison left a message
Jun 26, 2021 10:04 PM
Just wanted to contribute to your ride in memory of your dad, Frank! ALS is a relentless life altering disease that robs the patient and their family. Well done Jeff!
Catharina C Harrison donated $50.00
Jun 26, 2021 10:01 PM
Linda Doll left a message
Jun 26, 2021 9:13 AM
I’m so sorry that you lost your father to ALS — I know how incredibly difficult this would have been! I hope your biking, fundraising goes well and I wish you much joy, happiness and peace in your life!
Linda Doll donated $50.00
Jun 26, 2021 9:03 AM
Mary donated $100.00
Jun 26, 2021 8:46 AM
Alisa McNulty donated an undisclosed amount
Jun 25, 2021 8:58 PM
Anonymous donated an undisclosed amount
Jun 25, 2021 8:39 PM
Brody Ireton donated $15.00
Jun 25, 2021 7:23 PM
Robert Burnett left a message
Jun 25, 2021 4:30 PM
Keep up the great work. Love you.
Robert Burnett donated an undisclosed amount
Jun 25, 2021 4:29 PM
Carol donated $25.00
Jun 25, 2021 4:21 PM
PVC donated an undisclosed amount
Jun 25, 2021 4:14 PM
RBL donated $100.00
Jun 25, 2021 4:02 PM
Katelyn Von Hatten donated $50.00
Jun 25, 2021 3:47 PM
April left a message
Jun 25, 2021 2:32 PM
Sending you our love. You are an amazing human being!
April & Wil donated $50.00
Jun 25, 2021 2:29 PM
Gillian and Les Highfield left a message
Jun 25, 2021 1:43 PM
Remembering the special man Frank was. Frank's smile and loving nature continues on in you Jeff. Cheering you on
Les and Gillian Highfield donated $100.00
Jun 25, 2021 1:40 PM
Linda Dunk left a message
Jun 25, 2021 1:18 PM
Stay positive Jeff! Good for you doing this ride to honour your dad and raise awareness for ALS.
Linda Dunk donated $25.00
Jun 25, 2021 1:14 PM
Sari Deckelbaum donated $100.00
Jun 25, 2021 1:04 PM
Vicki Faubert left a message
Jun 25, 2021 12:52 PM
Good Luck, stay safe.
Vicki & Ron donated $50.00
Jun 25, 2021 12:52 PM
Al left a message
Jun 25, 2021 11:43 AM
Good for you!
Al & Nancy Wood donated $50.00
Jun 25, 2021 11:42 AM
Ken Hashizume donated $20.00
Jun 25, 2021 9:36 AM
Jeff and April Riddall donated $50.00
Jun 25, 2021 9:29 AM
Al L donated an undisclosed amount
Jun 25, 2021 9:26 AM
Christa left a message
Jun 25, 2021 9:13 AM
Love you Jeff. We miss Uncle Frank, and he would be so proud
Derek Brewster donated $50.00
Jun 25, 2021 9:12 AM
Diane White donated $300.00
Jun 25, 2021 8:21 AM
Kelly Walpole donated $50.00
Jun 25, 2021 7:55 AM
Russ & Heather donated $25.00
Jun 24, 2021 8:31 PM
Rix Lubenkov and Nancy Wilson donated an undisclosed amount
Jun 24, 2021 6:30 PM
Betti and Paul Robert donated $100.00
Jun 24, 2021 5:10 PM
Harry Mills donated $25.00
Jun 24, 2021 3:12 PM
Robins Family Tim Hortons donated $1,000.00
Jun 24, 2021 5:07 AM
Greg donated $50.00
Jun 22, 2021 5:51 PM
FIONNUALA MACLEAN donated $50.00
Jun 21, 2021 11:02 PM
Anonymous donated $50.00
Jun 21, 2021 9:45 PM
Paul and Natalie donated $70.00
Jun 21, 2021 9:18 PM
Sharon Wilson donated an undisclosed amount
Jun 21, 2021 8:37 PM
Donna Brewster donated $50.00
Jun 21, 2021 8:33 PM
Jess Brenner & Family - Go Jeff & Owen donated an undisclosed amount
Jun 21, 2021 7:34 PM
Bonnie Marentette left a message
Jun 20, 2021 9:57 PM
I am Owen Somerville's aunt and I'm thinking of both of you as you make this trip on Friday. Ride safe.
Bonnie Marentette donated an undisclosed amount
Jun 20, 2021 9:56 PM
Sheila Pin left a message
Jun 20, 2021 4:35 PM
Great initiative Jeff! And a great tribute to your dad. Best of luck.
Sheila Pin donated $100.00
Jun 20, 2021 4:26 PM
Joanne donated $50.00
Jun 20, 2021 7:47 AM
Mhairi donated $50.00
Jun 20, 2021 7:26 AM
Linda Romano donated $25.00
Jun 20, 2021 6:39 AM
Margaret &Ron Alexander donated $100.00
Jun 19, 2021 3:22 PM
Jess Durnan donated $25.00
Jun 18, 2021 8:18 PM
Anonymous donated an undisclosed amount
Jun 18, 2021 3:51 PM
Brant family donated $500.00
Jun 18, 2021 11:41 AM
Nuno Bamberg left a message
Jun 17, 2021 3:38 PM
INcredible cause, Jeff! Pleased to have a chance to contribute to it.
Debbie K left a message
Jun 13, 2021 11:39 PM
It is amazing what you are doing.I wish you the best of luck on yourJourney!
Debbie K donated $50.00
Jun 13, 2021 11:35 PM
Anonymous donated $50.00
Oct 15, 2020 12:49 PM
V donated $100.00
Sep 3, 2020 8:53 AM
Anonymous donated an undisclosed amount
Aug 18, 2020 12:40 AM
WY donated $2,000.00
Aug 17, 2020 7:51 PM
Al/Sharron/Owen Gedcke left a message
Aug 16, 2020 3:51 PM
to encourage you on your journey
al/sharron/owen gedcke donated $100.00
Aug 16, 2020 3:47 PM
Robert & Connie Burnett donated $300.00
Aug 15, 2020 5:25 PM
Pete Telford donated an undisclosed amount
Aug 15, 2020 2:18 PM
Angela left a message
Aug 15, 2020 12:41 PM
I too have lost a hero to this very ugly disease, mu husband of 33 years. He too progressed so rapidly in a matter of two-three weeks. He was only 61 years of age. My children and I miss him every hour of every day. Yes, more eyes definitely needed on this horrific disease. Thank you for your fundraising efforts.
Angela D’Alessio donated $100.00
Aug 15, 2020 12:37 PM
Wayne Thomas donated $100.00
Aug 15, 2020 11:29 AM
Danielle Winter donated $50.00
Aug 15, 2020 10:47 AM
Catherine Carter donated $25.00
Aug 15, 2020 7:14 AM
Derek Halbig donated an undisclosed amount
Aug 14, 2020 11:17 PM
Amy West-Heath left a message
Aug 14, 2020 10:41 PM
What an amazing accomplishment!
Amy West-Heath donated an undisclosed amount
Aug 14, 2020 10:34 PM
Judy Harrison donated $50.00
Aug 14, 2020 6:44 PM
Much love from #706 donated $100.00
Aug 14, 2020 4:57 PM
Joan Kalechstein donated $50.00
Aug 14, 2020 4:29 PM
Neil, Lii Ling, Nolan, Lara and Felix donated $50.00
Aug 14, 2020 4:05 PM
April & Wil donated $50.00
Aug 14, 2020 3:40 PM
Wayne left a message
Aug 14, 2020 3:23 PM
Nice to see you are following in Frank’s footsteps as a very special person
Catherine and Wayne Stewart donated $50.00
Aug 14, 2020 3:21 PM
Jenny Chapman donated $50.00
Aug 14, 2020 2:57 PM
Rob and Katrina Kerschner donated $100.00
Aug 14, 2020 2:16 PM
Val and Stuart McKean "salmonguy " donated $50.00
Aug 14, 2020 2:06 PM
Kayra Morrison donated $100.00
Aug 14, 2020 1:49 PM
Ines Leocadio (in memory of Frank Leocadio) donated $50.00
Aug 14, 2020 1:34 PM
Heather Jackson donated $50.00
Aug 14, 2020 1:31 PM
Linda Dunk left a message
Aug 14, 2020 1:00 PM
Your father Frank would be so proud of you as we all are. Go Jeff Go!!
Linda Dunk donated $50.00
Aug 14, 2020 12:58 PM
Judy Corfield donated $50.00
Aug 14, 2020 12:51 PM
Peter left a message
Aug 14, 2020 12:43 PM
Best wishes for your ride
Peter Brewster donated $100.00
Aug 14, 2020 12:39 PM
Steve & Beth. Loves. donated $250.00
Aug 14, 2020 12:02 PM
Ken Hashizume donated $20.00
Aug 14, 2020 11:48 AM
Julia Robins donated $50.00
Aug 14, 2020 11:21 AM
The McLaren Family donated an undisclosed amount
Aug 14, 2020 9:48 AM
Sam Cook left a message
Aug 14, 2020 9:22 AM
I will be checking in with you throughout the day on Facebook! So proud of you!
Sam Cook donated $100.00
Aug 14, 2020 9:21 AM
Mary andTony left a message
Aug 14, 2020 8:51 AM
See you later today!
Mary&Tony donated $50.00
Aug 14, 2020 8:50 AM
Jason Pento donated an undisclosed amount
Aug 14, 2020 8:14 AM
Ellie Vargas donated $50.00
Aug 14, 2020 7:33 AM
Aunt Donna left a message
Aug 14, 2020 6:53 AM
So very Proud Love you
Dave and Donna donated an undisclosed amount
Aug 14, 2020 6:52 AM
Anonymous donated an undisclosed amount
Aug 14, 2020 1:30 AM
Debbie Drutz donated an undisclosed amount
Aug 14, 2020 12:46 AM
Jade Pankamo donated $50.00
Aug 13, 2020 11:36 PM
Louise Crowley donated an undisclosed amount
Aug 13, 2020 11:01 PM
M Flood donated $50.00
Aug 13, 2020 9:16 PM
Adrienne Clapperton donated an undisclosed amount
Aug 13, 2020 8:51 PM
Paul G. donated an undisclosed amount
Aug 13, 2020 8:32 PM
Vicki Chadwick donated $25.00
Aug 13, 2020 8:07 PM
Penny and Bill Walpole donated $50.00
Aug 13, 2020 7:38 PM
Lisa Campbell donated $40.00
Aug 13, 2020 7:30 PM
Anonymous donated $25.00
Aug 13, 2020 7:28 PM
The Nayler family. donated $50.00
Aug 13, 2020 7:17 PM
Al left a message
Aug 13, 2020 2:22 PM
Frank would be so proud!
Al & Nancy Wood donated $50.00
Aug 13, 2020 2:21 PM
John Crowley left a message
Aug 13, 2020 2:16 PM
Jeff, your local news story popped up on my Facebook feed. I’m so sorry to hear of this news and applaud your effort. Good luck in your ride this weekend. And pass along my condolences to your Mom. I’d love to be in touch with her if you want to pass my contact info along.
John Crowley donated $100.00
Aug 13, 2020 2:12 PM
Sophia Lourenco donated $50.00
Aug 13, 2020 10:25 AM
Sherry Robinson and family donated $50.00
Aug 13, 2020 8:56 AM
Lena DeKeyser in memory Aunt Pauline donated $40.00
Aug 12, 2020 9:18 PM
Dawn Taylor donated $100.00
Aug 12, 2020 5:34 PM
Margo donated $50.00
Aug 12, 2020 4:45 PM
Judy Kerschner left a message
Aug 12, 2020 3:10 PM
Wishing you a successful ride Jeff. Your Dad would be so proud!
Judith Kerschner donated an undisclosed amount
Aug 12, 2020 3:09 PM
Sara Foley donated $50.00
Aug 12, 2020 2:43 PM
Charlene Recker donated an undisclosed amount
Aug 12, 2020 11:17 AM
Jodie and Xavier Vargas donated $100.00
Aug 12, 2020 11:07 AM
Jess & Pat Durnan donated $100.00
Aug 11, 2020 9:40 AM
Diane White donated $250.00
Aug 10, 2020 10:59 PM
Lisa Grealis donated $50.00
Aug 10, 2020 10:05 PM
Marg alexander left a message
Aug 10, 2020 7:00 PM
Sending love and strength for your ride on Saturday. Will see you at the start.??
Yes donated $100.00
Aug 10, 2020 6:58 PM
Russ & Heather Pierson donated $100.00
Aug 10, 2020 3:13 PM
Carissa White donated $50.00
Aug 10, 2020 2:20 PM
Pam Mugford left a message
Aug 10, 2020 1:47 PM
Your dad is so proud of you Jeff, and so am I. It is a privilege to support you in this journey.
Pam Mugford donated $100.00
Aug 10, 2020 1:45 PM
Brad Houle donated $25.00
Aug 10, 2020 1:32 PM
William Shortt in Memory of my Father Phil Shortt donated $25.00
Aug 10, 2020 1:05 PM
William Shortt - Cambridge ON left a message
Aug 10, 2020 1:02 PM
Thank you for what you are doing, I saw my father painfully go through almost 3 years of ALS and the end result was assisted suicide after removing life support Feb 2009. Dad was only 56 I was only 24 at the time and It was one of the hardest decisions to make ever in my life
Nikki Damp donated $100.00
Aug 10, 2020 10:31 AM
Anonymous donated an undisclosed amount
Aug 9, 2020 10:16 PM
Beatrice Head in Memory of Teresa Arabia donated $200.00
Aug 9, 2020 2:54 PM
Virginia Plater donated $50.00
Aug 6, 2020 11:24 AM
Sheree Glen left a message
Aug 6, 2020 10:55 AM
Thinking of you on your journey. Grateful to you for bringing awareness to this devastating disease.
Sheree Glen donated an undisclosed amount
Aug 6, 2020 10:53 AM
Betti and Paul Robert donated $100.00
Aug 6, 2020 8:10 AM
Sharon Dagenais (nee Jones) donated $100.00
Aug 6, 2020 12:38 AM
Sharon Dagenais (nee Jones) left a message
Aug 6, 2020 12:28 AM
What a great thing to do to honour your Dad. I grew up with Frank(ie) on 44th in Lachine. Our parents were great friends. As a matter of fact I have some pictures I want to send to Diane and you. I will read further of your endeavour and will certainly sponsor/contribute when I read what to do. My best to you. Frank was a great guy.
Vicki Faubert left a message
Aug 5, 2020 8:17 PM
you got this, your dad would be so proud of you. Hugs and good luck
Vicki & Ron Faubert donated $100.00
Aug 5, 2020 8:16 PM
Amber Hunt-Wolfraim donated $100.00
Aug 5, 2020 4:37 PM
Stephanie Di Leo donated $50.00
Aug 5, 2020 3:39 PM
The Robins Family Tim Hortons donated $1,500.00
Aug 5, 2020 1:12 PM
Irene Cook donated $50.00
Aug 5, 2020 9:44 AM
Linda Courtois left a message
Aug 5, 2020 9:31 AM
Donation made. What a wonderful thing you are doing! All the best in your ride.
Linda Courtois donated an undisclosed amount
Aug 5, 2020 9:29 AM
Mary van Leeuwen donated $25.00
Aug 3, 2020 2:46 PM
Mitzi Perez (mitzfitness) donated $50.00
Jul 31, 2020 10:34 PM
Brian Ashworth donated $50.00
Jul 31, 2020 9:20 PM
Shelley Middlebrook donated $50.00
Jul 31, 2020 4:32 PM
Ben Wilson donated $100.00
Jul 31, 2020 10:27 AM
Anonymous donated $100.00
Jul 30, 2020 1:01 PM
Auntie Linda left a message
Jul 29, 2020 6:51 PM
You are one of a kind! You can do this!??????
Linda Morrison donated $50.00
Jul 29, 2020 6:49 PM
Angela Drag in memory of Teresa Arabia donated $200.00
Jul 29, 2020 6:48 PM